Follow the breadcrumbs...

Do you remember the childhood story Hansel and Gretal?  It has just dawned on me that this story is very applicable in my life.  I feel like I'm constantly chasing little breadcrumbs.  If I can just reach the next breadcrumb then I can make it through the day.  This weekend was great!  However, I used up all of my breadcrumbs and some.  I thought I had it all planned out.  I could afford to wear myself out since I was going to get my fluids Monday.  The problem is that I depend on others to give me breadcrumbs and since I my nurse decided to cancel on Monday...guess who spent Monday and today in bed.  It's okay...it was worth it I had a great time. 

I've managed to keep my attitude in check for the most part lately.  Just trying to get by.  Trying not to get my hopes up.  Every time I take a few steps forward I take a few back.  I guess the thing that frustrates me more than anything is the fact that I can't work because doctor's can't agree about what's going on with me so I can't get disability.  Not to mention that, the Social Security office doesn't take the time to find out what Dysautonomia is anyway.  Oh well, guess I'll follow the breadcrumbs to the Social Security and have to fight with them.