Hmmm....

Hmmm...What do I say when I don't know what to say.  I have continued to be amazed by the greatness of my God and what he has done in my life recently.  He has brought one of my best friends safely through surgery this week, placed new friends (that I think have hidden wings) in my life, blessed me with six year of marriage to the man of my dreams and the blessings just keep coming.  However, in the midst of his greatness, I am still human. I still get scared, I still question and yes...although it gets me nowhere I worry.

This has been a rough week and the reason for no recent post.  I apologize for that.  I am now officially off any and all meds for my POTS.  This is not a good thing.  I am growing weaker by the day.  The doctor has been steadily taking me off one medication after another for one side effect or another.  The one medication that has seemed to make the biggest difference for me DDAVP, which raises my blood pressure and creates blood volume two of my biggest problems, has began causing major bladder problems for me.  I believe I am now on day four or five of being off of it and let me tell I'm going no where fast but the floor!  (I'm not joking, I really keep ending up on the floor)  The doctor thinks that he has exhausted all of his options until further review from Mayo so...18 days and counting.  (I guess I'm unfired now????)

I have some exciting news for those of you with Dysautonomia and those of you that support us.  Look for it coming by the end of next week via my blog.  Also,  I have now created an e-mail address where anybody can feel free to contact me for support, questions or just and ear to listen.  It is potsawareness@hotmail.com.  Keep raising awareness!  Keep standing up for those of us that sometimes can't!