My Invisible Thorn

Friday, September 17, 2010

Dysautonomia Awareness Week (Not quite the way I intended)

Posted by Amber at 7:49 PM

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2 Corinthians 12:8-10

Three times I pleaded with the Lord to take it away from me. But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more gladly about my weakness, so that Christ's power may rest on me. That is why, for Christ's sake, I delight in weakness, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.

About Me

Amber: Irving, Texas, United States; I am a 27 year old Follower of Christ, Wife and Mother. I suffer from a type of Dysautonomia called Postual Orthostatic Tachycardia Syndrome (POTS). Although I may look normal on the outside, I am far from ok on the inside. Simple involuntary bodily functions that most people take for granted, are extremely difficult for me. My body does not regulate my heart rate, blood pressure, body temperature, digestion and the list goes on. There is no cure for POTS and there are a myriad of causes that are extremely difficult or impossible to pinpoint. In my case, we are 99.9% sure my cause was pregnancy. I created this blog to raise awareness for this rare but debilitating illness. I encourage everyone to become educated! A little knowledge never hurt anyone :)

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POTS Links

Hope for Blue Dysautonomia Foundation
National Dysautonomia Research Foundation
Posty Girl
The "POTS" Place
The Dysautonomia Connection
The Spoon Theory

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Friday, September 17, 2010

Dysautonomia Awareness Week (Not quite the way I intended)

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