Sunday, September 19, 2010

Reliving the nightmare

Do you ever have a bad dream and then wake up but you're too scared to go back to sleep because you're afraid you might have that dream again?  I feel like this is my life sometimes.  I try to stay positive and hold tight to my faith but I'm telling you I came home from the hospital in worse condition than when I went in.  I'm weaker now than I have ever been.  I am constantly falling and feeling completely and utterly confused!  Sometimes, I feel like I have Alzheimer's at the age of 27.  Something is just not right.  The doctor's don't have a clue...of course.  I'm maintaining my hope though.

Tonight, Justin was shaving his head (which I was in strong opposition to but that is a whole other story) and Collin and I we sitting in the bedroom watching him cut his hair and laughing at him while he was doing it.  I was weak but Collin was sitting still so it was ok.  Justin asked me if he could run through the shower so he could wash the hair off.  I thought I could handle it.  I really did.  We have a baby gate at the entrance to our room so he couldn't escape but there were lots of little distractions for the little guy.  Justin wasn't in the shower five minutes and when he got out he yelled "are you ok?"  I was sobbing.  Collin was running back and forth and was hiding along side of the bed where I was unable to bend down to see him.  My heart was tachycardic my feet were blue from trying to stay upright for too long.  I just broke down.  "I can't take care of my son" I told Justin.  This is a nightmare I relive everyday.  All I ever wanted was to be a mom.  The fact that I can't take care of my son makes me angry and sad all at the same time. 

Why me God?  Why did I have to be the one you chose to allow to have POTS?  Was it a lesson? Is it to help someone else? Is it to help myself?  I don't know?  I may never know.  I was reading in my Bible last night and as I was lying here crying in pain as I do a lot of nights I read Proverbs 19:21 Many are the plans in a human heart, but it is the Lord's purpose that prevails.  Got it God I thought.  I will not commence my pity party.  I do have so much to be thankful for.  I just need to be reminded of that sometimes.

3 comments:

  1. Amber, I came to your blog following the call to prayer from Daniel and Dorothy Kent (our backyard neighbors).

    Please know that I am praying for you. For comfort. For peace that passes understanding. For your husband, your sweet, precious baby boy. I'm praying for knowledge for your care team.

    God's got this. Whether we understand His plan and His timing or not.

    Blessings,

    Abbi
    http://abbischmidt.blogspot.com

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  2. WOW Amber, Jerry and I will be praying for you and your sweet family. I would love to help with Justin and you. I will get in touch. Stay very close to God as I know you will. James 5:10-11 You have heard of Jobs perseverance and have seen what the Lord finally brought about. The Lord is full of compassion and mercy and will do the same for Amber.

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  3. OK, as you know, I'm all about prayer....

    BUT, looking at your cute picture....
    I'm with you.....I think your husband needs his HAIR!!!!!!! :)

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