So, after a week long stay in the hospital I have realized a few things. There is some validity to the call don't fall signs...I'm just saying. As for us postys girls, if you want me to call, don't take it out of my room. I now have the egg on my forehead to prove I should have called before I fell into the metal door frame of the bathroom in the middle of the night...I'm just saying. Did they really think in my (attention this is my graphic disclaimer) dizzy, vomiting, brain fog, low blood pressure, migraine, dehydrated and malnourished state that I was going to remember to do it on my own?
I'm not joking when I say two days ago I was in the worst pain I have EVER been in, in my entire life. The migraine went on for 6 days and I literally thought I was going to go insane. Having a baby was less painful than the the things my body was doing. I would never wish it on any one. I didn't get to see my baby for three days because two of the days I was incoherent and the third they kept telling me I was going home and then I wasn't it was a mess. By the time Friday rolled around, I was depressed because I missed my family so much.
Then this is my favorite, so, the doctor who has been treating me for my POTS the same doctor that keeps telling me its not that bad. If its not that bad them why is he firing me? He says he doesn't know what else to do with me...but he doesn't know who would either. Really? Do they give refunds on the degrees given from the school he's attended? I'm just saying. I have a bit of anger and I realize this but who wouldn't. I'm trying so hard not to give up on myself when everyone else is giving up on me. I'm not going down without a fight! Phil. 4:13 I can do all things through Christ who strengthens me. Even if I'm I'm the only one left standing (relatively speaking.)
I did get my POTS doctor, the one that does not know what to do with me, to get on the phone and with Mayo and get me on the Semi Urgent List...Praise God!!! We are now awaiting a phone call to tell us when the appointment will be so please, please, please join me and my family in prayer. We really believe that this could be the answer to a better life for me.
My POTS doctor swears that all the symptoms are not connected but everyone else on the face of the planet says that they are. I agree that maybe the brain cyst is unrelated but the vomiting and all of that is typical POTS symptoms and he is telling me he can not treat me for those things?????? I'm so confused!!! As I paused between puking spells to try and explain to him how I was feeling and sobbing all the way that was the first time I have ever seen my doctor really show any sign of emotion. Maybe he finally got it. I don't know.
Nevertheless, I am home now. I am completely drained, exhausted and thankful to be out of there all at the same time...I'm just saying.
everyone in va loves you and your family! we will get you into the mayo if its the last thing i do! i love you girl and we will beat this together. the doctor may have given up on you but WE havent!! love you!-shannon spicer
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